News Archive

2022 International TTP Day Fundraising Continues

By Sydney Kodatsky | Friday, September 30, 2022 - 6:31am

Thank you to all those who have registered, and are fundraising for TTP. 

It isn't too late. Registration and fundraising continues through the end of October. We are over half way to our fundraising goal!

 

Answering TTP In The News

Mina Shares Her Story

By Sydney Kodatsky | Thursday, September 22, 2022 - 12:00am

Over the years, Mina has bravely shared her story to raise life-saving awareness and improve treatment options for our TTP community. Thank you Mina!

 

What is in a name? TTP

By Sydney Kodatsky | Sunday, September 11, 2022 - 7:55am

Thrombotic Thrombocytopenic Purpura is a mouthful! It took me months before it would roll off my tongue (and it sometimes still gets stuck). The good news, is that the name is meaningful even to those medical professionals unfamiliar with this rare and devastating disease.

  • Thrombotic -  blood clots form in the blood vessels
  • Thrombocytopenic -  having too few platelets
  • Purpura - bruising spots on the skin

TTP Education Material

By Sydney Kodatsky | Sunday, September 11, 2022 - 7:02am

As we approach International TTP Day, it is great to see education materials from various sources. Check out the infographic from a pharma (see link below). Raising awareness will save lives. Do your part to spread awareness. Register for International TTP Day now. It is free. Raise funds your way, and be part of this global initiative to fund TTP research. 

Study Survey - Living with TTP

By Sydney Kodatsky | Wednesday, June 15, 2022 - 7:18am

Shruti Chaturvedi (Associate Professor of Medicine, Division of Hematology, Johns Hopkins University School of Medicine) is conducting an investigation looking at how access to care impacts health disparities in individuals living with TTP.

Contribute to this research by following this link to participate in the survey. More details here.

Canadian Survey Critical Piece of Our Submission

By Sydney Kodatsky | Tuesday, May 24, 2022 - 6:07am

Our advocacy efforts are being heard. We are very excited to hear that Cablivi (caplacizumab) will be submitted for reconsideration by Sanofi! This resubmission is a critical waypoint on our quest for access. We have work to do to prepare our own submission to decision makers, and we need your help now. Click the survey link below.

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