Canadian TTP Action Group
By Sydney Kodatsky | Tuesday, March 16, 2021 - 6:42am
News Archive
USTMA New Guidance
By Sydney Kodatsky | Saturday, February 27, 2021 - 6:36am
The USTMA physicians have collaborated and created a document giving guidance on the diagnosis, treatment, and outpatient follow up of patients with TTP.
Yuhlan Takes Part in Rare Disease Day 2021 Effort
By Sydney Kodatsky | Monday, February 15, 2021 - 7:36am
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Yhulan has shared her story as part of a 2021 Rare Disease Day initiative called Canada's Rare Voices
TTP Remains a Medical Emergency Despite Pandemic
By Sydney Kodatsky | Thursday, February 4, 2021 - 7:01am
A TTP crisis is a true medical emergency. Potentially fatal complications can result from internal blood clotting, with damage to critical organs such as the brain and heart. Early intervention is critical to survival. The Heart and Stroke Foundation of Canada has issued the following release urging patients in emergency to seek care.
Hereditary TTP Registry publishing daily stories
By Sydney Kodatsky | Wednesday, December 16, 2020 - 3:20pm
To help spread awareness and education about TTP, the Hereditary TTP Registry in Switzerland is publishing daily stories. What an innovative idea. Check out their Advent calendar of information here.
Mina takes part in launch of Patient Voice
By Sydney Kodatsky | Wednesday, December 16, 2020 - 2:59pm
Congratulation to Mina for lending her story to help launch Patient Voice. Patient Voice is a social media platform (Instagram, Facebook, YouTube) intended for Canadian patients, their caregivers, as well as the general public. Every week they share a short story, as well as educational information and/or helpful statistics.2020 International TTP Day Raises $30,730!
By Sydney Kodatsky | Sunday, December 6, 2020 - 6:09am
Support Groups
Ask the Hematologist (USTMA Consortium)
By Sydney Kodatsky | Friday, November 20, 2020 - 12:00am
Support Groups
Virtual Peer Support
By Sydney Kodatsky | Wednesday, October 14, 2020 - 7:23am
Our Virtual Peer Support meeting on Wednesday, October, 7 was a great opportunity to discuss how TTP has impacted our lives. Everyone got to share their story and ask questions of the group. Participants that have had TTP for a while were able to share helpful information with the more newly diagnosed participants. See you in December!
USTMA Consortium National Virtual Meeting
By | Sunday, September 6, 2020 - 7:34am
The United States Thrombotic Microangiopathy (USTMA) Consortium patient meeting held virtually on Saturday, August 22, 2020 was extremely informative. The all day meeting format was set up very well allowing patients to ask questions. Some excellent information, from experts in the field, was shared about TTP history, research, preventing relapse, the effects on the brain, particular issues for women, etc. Recordings from the meeting are available on their website here.