Our Accomplishments

Answering TTP Foundation was formed in 2009 to raise funds for TTP research at a local Toronto Hospital. Since that time, Answering TTP Foundation has grown to reach to over 3,000 stakeholders, incorporated and gained charitable status. The Foundation's community is growing every day and so is our list of accomplishments, because together we can change the prognosis of TTP for all those affected!

2018

• In September, the Foundation's research grant committments reach over $1.8 Million through 2020.
• The first International TTP Day, on Saturday, September 15, 2018 engaged the international TTP Community to raise over $30,000.
• On April 21, 2018, the 9th Annual Chance for Change Game Night took place in Toronto, Ontario and raised over $200,000 in one evening for TTP.

2017

• In September, the Foundation's research grant committments reach over $1.7 Million through 2019.
• On Saturday, September 16, 2017 150 participants raised over $40,000 toward the annual Walk to Answer TTP Together.
• In April, the 8th Annual Chance for Change Game Night took place in Toronto, Ontario and we celebrated raising $1 million dollars to date from this event.

• On October 28, 2014, Answering TTP Foundation piloted its Volunteer Patient Speakers Bureau, a new program that brings TTP patients into the classrooms of medical students to help bring awareness and a voice to TTP. 

• On October 7, 2014, Answering TTP Foundation held its Annual Toronto & Virtual Support Group & Info Session, which allows participation from both the local and international community. 

• In September 2014, Answering TTP Foundation committed to funding a new exciting project, The Role of Complement Factor H Abnormality in Pathogenesis of Thrombotic Thrombocytopenic Purpura.

• On September 20, 2014 Answering TTP Foundation held its 4th Annual Walk to Answer TTP Together. Over 320 participants registered to participate in the walk in their local communities from across the globe. Over $24,500 was raised in support of the Foundation.

• On September 19, 2014, Answering TTP Foundation attended the OIAA Golf Tournament, where we were presented a cheque, of over $2,000, to help support the Foundation's initiatives in education, support and research.

• On September 3, 2014 Answering TTP Foundation joined Twitter! Follow us @TTPFoundation. 

• In August 2014, Answering TTP Foundation published its first journal article entitled A Patient's Perspective.

• In July 2014, Answering TTP Foundation committed to funding a new exciting project, Long-term Vascular Outcomes of Idiopathic Thrombotic Microangiopathy Treated with Plasma Exchange.

• On June 3, 2014, Answering TTP Foundation attended the Ohio State University TTP/aHUS Research Program Support Group. 

• On May 31, 2014, Answering TTP Foundation held a support group in Vancouver, BC.

• On May 8, 2014, Answering TTP Foundation manned the first ever Answering TTP Foundation booth at the North York General Emergency Medicine Update Conference. 

• On April 12, 2014, Nazgol embarked on her journey to Mount Everest Base Camp in a 3rd party event she called Trekking for TTP. The event helped to raise life-saving awareness for TTP as well as raising $2,500 to benefit the Answering TTP Foundation.

• On April 12, 2014, The 5th Annual Chance for Change Game Night, benefitting the Answering TTP Foundation took place in Toronto, ON. $200,000 was raised for the Foundation. 

• On March 4, 2014, Answering TTP Foundation spent the day on Parliament Hill in Ottawa, ON. Bringing awareness of TTP and the need for support in gazetting the Canadian Orphan Drug Regulatory Framework. 

• In December 2013, Answering TTP Foundation's first public awareness announcement advertisement was published in the print version of Canadian Family Physician's VOL 59 Issue. 

• On September 21, 2013, Answering TTP Foundation held its 3^rd Annual Walk to Answer TTP Together. Over 300 participants registered to participate in the walk in their local communities from across the globe. Over $33,500 was raised in support of the Foundation.

• In September 2013, Answering TTP Foundation committed to funding 2 new exciting research projects, The Relationship of Complement Activation to Clinical Outcomes in Patients with Acquired Thrombotic Thrombocytopenic Purpura Mediated by Severe ADAMTS13 Deficiency & Developing novel preclinical models of Thrombotic Thrombocytopenic Purpura.

• In August 2013, Answering TTP Foundation's first awareness article was published (print and online) in Hospital News. 

• On May 8, 2013, Answering TTP Foundation held a Toronto and Virtual Support Group & Info Session.

• On April 29, 2013, Answering TTP Foundation hired its first staff person to support and further the Foundation's charitable activities.

• On April 14, 2013, Answering TTP Foundation hosted its first TTP symposium as part of the Canadian Apheresis Group’s Annual Meeting. Also on this date, the Foundation held its first support group session in Winnipeg, Manitoba, which was attended by 20 patients.

• On March 3, 2013, Answering TTP Foundation hosted the first Quebec Meet and Greet session for patients and supporters.

• On March 1, 2013, Answering TTP Foundation made its third stop on its Canadian Roadshow in Montreal, Quebec.

• On February 2, 2013, the 4th Annual Chance for Change Game Night, benefitting the Answering TTP Foundation, was held. $150,000 was raised to benefit the patient support, education and research.

• On November 17, 2012, Answering TTP Foundation volunteer, Iveta Finnson, organized a Support Group & Information Session in her community, Vancouver, British Columbia.

• On September 22, 2012, Answering TTP Foundation held its 2^nd Annual Walk to Answer TTP Together. 150 participants registered to participate and helped to raise $30,000 in support of the Foundation.

• On August 27^th, 2012, Answering TTP Foundation Participated in the 3^rd Annual Big Save event hosted by Canadian Blood Services.

• On August 11, 2012, Answering TTP Foundation had its first 3^rd party fundraiser event take place, where people from outside the Foundation put together an event to raise funds in support of the Foundation.

• On June 2, 2012, the 3rd Annual Chance for Change Game Night, benefitting the Answering TTP Foundation, was held. $125,000 was raised to benefit the Foundation.

• On May 23, 2012, Answering TTP Foundation made the second stop of its Canadian Roadshow in Saint John, New Brunswick.

• On May 22, 2012, Answering TTP Foundation made its very first stop on its very first Canadian Roadshow in Halifax, Nova Scotia.

• On April 10, 2012, Answering TTP Foundation attended the 1^st ASFA TTP Consensus Conference.

• On March 11, 2012, Answering TTP Foundation held a Support Group and Info Session in Calgary, Alberta.

• On March 8, 2012, Answering TTP Foundation held its 1^st Toronto TTP Support Group and Information Session with conference call in capabilities, making it possible for people from outside of Toronto and even Canada to participate in the Session. Also, this was the first time the Foundation was able to host a international TTP expert Doctor (Dr. Scully, University London Hospital).

• On February 29, 2012, Answering TTP Foundation hosted its first Rare Disease Day TTP Blood Drive.

• On October 27, 2011, Answering TTP held its 3^rd Toronto TTP Support Group and Information Session.

• On September 24, 2011, Answering TTP Foundation held its 1^st Walk to Answer TTP Together. 70 participants registered to participate and helped to raise $22,000 in support of the Foundation.

• On July 1, 2011, Answering TTP Foundation officially became a recognized registered charity. 

• On June 20, 2011, Answering TTP Foundation helped to coordinate volunteers for Canadian Blood Services Annual Big Save, held in Toronto, Ontario.

• On June 4, 2011, the 2nd Annual Chance for Change Game Night, benefitting the Answering TTP Foundation, was held. $80,000 was raised to help the Foundation fund research, patient support and education.

• On April 20, 2011, Answering TTP Foundation held its 2^nd Toronto TTP Support Group and Information Session.

• In March 2011, Answering TTP Foundation took its Canadian Roadshow to Vancouver and held the 1^st Vancouver TTP Support Group and Information Session.

• On March 3, 2011, Answering TTP Foundation took its Canadian Roadshow to Edmonton & Calgary, Alberta.

• On March 2, 2011, Answering TTP Foundation took its Canadian Roadshow to Saskatoon, Saskatchewan.

• On February 28, 2011, Answering TTP Foundation took its Canadian Road show to Winnipeg, Manitoba.

• On February 1, 2011, Answering TTP Foundation lauched its 1st Canadian Roadshow with stops in London and Hamilton, Ontario. 

• On November 20, 2010, Answering TTP Foundation attended our first conference of the Network of Rare Blood Disorders Organization (NRBDO) and subsequently became a member.

• On November 3, 2010, Answering TTP Foundation became a member of Partners for Life through Canadian Blood Services. 

• In October 2010, Answering TTP Foundation became a member of the Canadian Organization of Rare Disorders (CORD).

• On September 14, 2010, Answering TTP Foundation’s Founder, Sydney Kodatsky, helped to launch Canadian Blood Services, Toronto Bloodmobile.

• On August 24, 2010, Answering TTP Foundation officially incorporated.

• In May 2010, the first Chance for Change Game night (then known as Chance & Challenge Game Night) in support of the St. Michael’s Hospital Apheresis Unit, was held. 80 people attended the event and $22,000 was raised to aid in the treatment of TTP!

To get a more in-depth look at our history check out the Foundation's Blog!