By Sydney Kodatsky | Friday, May 22, 2020 - 7:18am
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
This year Answering TTP Foundation partnered with other rare disease organizations to celebrate in an unforgettable day of empowerment and education in Toronto and online. Josie Dye's story (Indie88 Morning Show Host, broadcaster, and “rare” mom) was featured.
Initiative partners: Canadian Organization for Rare Disorders, Canadian Association of Pompe Canadian Fabry Association, Canadian MPS Society, and National Gaucher Foundation of Canada.
More about this day at the Rare Disease Day website.